Updated: Mar 19
Your Voice Matters
Are you or a loved one living with a brain injury and participating in the Medicaid Acquired Brain Injury Waiver Program? Feeling heard and respected in your care journey is not just important, it's your right. Here's how you can make your voice count.
1. Know Your Rights:
Understand your rights within the ABI Waiver Program. You're entitled to quality care, respect, and a voice in your care plan. Familiarize yourself with the program's policies.
2. Point of Contact:
Identify your case manager or a designated contact person within the program. They're there to listen and address your concerns.
3. Document Your Concerns:
Keep a record of instances or issues that concern you. Note dates, times, and details. This will be crucial for clarity and reference.
4. Formal Complaint Process:
Learn about the formal complaint process. This usually involves submitting a written complaint to the program administrators or state health department.
5. Seek Advocacy:
Consider reaching out to a patient advocate or a legal professional specializing in disability rights. They can provide guidance and support in navigating the system.
6. Connect with Support Groups:
Sharing your experiences with others in similar situations can be empowering. Support groups offer a space for sharing solutions and mutual encouragement.
7. Utilize State and Federal Resources:
Remember, state health departments and federal agencies oversee these programs. They can be valuable resources if your concerns aren't being addressed locally.
8. Continuous Feedback:
Provide feedback, both positive and negative. This helps improve the program for everyone.
Remember: Your experiences and feedback are invaluable in shaping a more responsive and empathetic ABI Waiver Program. Let's work together to ensure every voice is heard and every concern is addressed.